Purple_Shaman @purple_shaman@qoto.org

New from Moreau team in Canada:

"Circulating microRNA expression signatures accurately discriminate #myalgicencephalomyelitis from #fibromyalgia and comorbid conditions"

Free:
https://www.nature.com/articles/s41598-023-28955-9

"The results of this study demonstrate that ME/#CFS & #FM are two distinct illnesses"

#MEcfs #ChronicFatigueSyndrome #Fibro #FMS #PwME @mecfs

#Gratitude Day 22

#Today I’m grateful for resilience.

Resilience isn’t sexy. There are no great outcomes, and no prizes for resilience. Resilience doesn’t mean being okay all the time. I love that one definition of resilience is the ability of a substance or object to spring back into shape. Allowing yourself to fall apart and not cope is part of resilience too. Giving yourself that space and trusting that you will come out the other side. #mecfs

What are you grateful for today?

This from @SivaAnandaciva@twitter.com is worth repeating from this piece by @Ben_Spencer@twitter.com which looked in-depth at charging in Ireland and why it isn't the best of ideas: https://www.thetimes.co.uk/article/nhs-charge-fee-reform-patients-pay-gp-health-service-uk-zknv7l0ff

Sure, Twitter’s taken a 40-percent revenue hit — but it’s nothing that can’t be fixed with the sale of $8 blue checks to the Taliban, hm?

It was an absolute pleasure speaking with Prof Chris Ponting & Andy Devereux-Cooke about @DecodeMEstudy@twitter.com

Full episode wherever you get your podcasts, at http://www.LongCovidPodcast.com

or direct link: https://www.buzzsprout.com/1835170/11825155

#LongCovid #MECFS

Emeritus Professor Warren Talks gives a talk at the ANZMES 42nd Annual General Meeting on Saturday 19th November 2022 about his latest research into ME/CFS and #LongCovid

https://www.youtube.com/watch?v=weQ0kK0Fgrs

@longcovid @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME

Hey everyone. Just wanted to eliminate the confusion and let you know that this is actually me. 😂 Hope you are having an awesome Thursday!

£3.7 billion - that was our estimate of the yearly cost of #LongCovid to the Exchequer in our submission to the Health & Social Care select committee
inquiry

This didn't include healthcare costs or loss of productivity

What IS the plan Rishi Sunak?

https://www.independent.co.uk/news/uk/politics/sunak-long-covid-benefits-work-b2251905.html

What will happen if we’ll RETHINK our street corners?

We'll realize that until now, we've made them too car-centric. Street corners are designed for fast driving, which means pedestrians have to risk their safety just to cross the street.

But if we’ll rethink our street corners we’ll get

■ More space for pedestrians
■ Shorter crossing distance and time
■ Greener spaces
■ Safer Streets
■ Beautiful street corners

A great example from PGAA Creative Design in Manila

I don't think this is getting the coverage it needs. Scottish government to require passivhaus standard for all new build homes. This is big. Really big. Growing out of lessons from the 70's oil crisis. Passivhaus buildings use very little energy to heat, or to cool. We've known how to do this for decades. It's gross negligence from all western governments that the same is not true of all new builds in the developed world.

https://www.thenational.scot/news/23197204.government-announces-passivhaus-standards-adopted-scotland/

this must be the first time I've seen the word #aptamer on the front page of the guardian website: 

https://www.theguardian.com/business/2022/dec/25/aptamer-york-biotech-cancer-treatments    

From ME Research UK:

Cort Johnson from the Health Rising blog looks at the potential links between long COVID and ME/CFS, and whether the massive surge of interest in the former will ultimately benefit people with ME/CFS. #LongCovid #MECFS

https://www.meresearch.org.uk/what-can-long-covid-research-tell-us-about-me-cfs/
@mecfs #MyalgicEncephalomyelitis #chronicfatiguesyndrome

🚨The attached slide, presented at EU-US Conference, says NIH RECOVER initiative is planning on clinical trials for long Covid that focus on rehabilitation (code for graded exercise?) and CBT.

GET and CBT have been shown to be ineffective for patients with post exertional malaise - why repeat past mistakes?

➡️ Tell RECOVER to stop! Send email using this template:
https://docs.google.com/document/d/1OVj_2BBnQSY19VGEDAAleihdqlsT-Ax6-yIpoUvkLNE/edit

🔁 Please boost

#LongCovid #MEcfs #POTS #NEISvoid #ChronicIllness #Disability
#NIH #RECOVER #Research

Fire annoys arsonist

Oh hell yeah. @mozilla is launching a Mastodon instance in early 2023! I’m very excited for this. Mozilla is really good at what they do. Firefox has over 200M monthly active users, and with any luck they’ll build better support for the fediverse into Firefox itself. Mastodon will greatly benefit from easy to use professionally run instances that can handle massive scaling https://blog.mozilla.org/en/mozilla/mozilla-launch-fediverse-instance-social-media-alternative/

Looking for the womxn #science writers and #Journalists on Mastodon? Here we are! (Some of us, anyway) Who else is out here? #journalism #womeninstem

@Kelcsimpkins
@SusanCunningham
@biancanogrady
@laminda
@inkfish
@Ckatz99
@lizseegert
@skrishna
@payaldhar
@lguterman
@EstelleSErasmus
@jamesian
@Trailanderror
@lqlqlq
@jenniferbillock
@AntoniaJuhasz
@alexwitze
@judeisabella

Ambulances haven't been able to respond in a timely fashion for ages, particularly for non-time critical issues. Politicians and senior NHS staff complain about it today as though it apparently didn't matter yesterday or the day before of every other day in the recent past.

The #AmbulanceStrikes are the only tool ambulance staff have to make this point.