#autism
These are public posts tagged with #autism. You can interact with them if you have an account anywhere in the fediverse.
All over the world, medical and allied professionals engage in scientific processes to help diagnose #autism.
I think consideration should be given to stopping that now. Where I live, the diagnoses changes nothing for those receiving it as we have needs based care anyway. But having a label which the US - with their lovely gospel of colonial settlement are engaged with - is making dangerous means we perhaps need to stop issuing the label.
'The National Institutes of Health launches a new autism database to track #Americans with #autism .'
New decisions from Trump, and new fallout. An overview…
Reporters Onlinehealth,healthcare
(21 Apr) RFK Jr. Spews Even More Nonsense on Autism, Covid in Latest Interview
During a radio interview this past Sunday, RFK Jr. argued that autism was worse than the pandemic because "COVID killed old people."
https://s.faithcollapsing.com/1s8pd
Archive: ia: https://s.faithcollapsing.com/hwyt3
#autism #covid-19 #health #rfk-jr #robert-f.-kennedy-jr. #vaccines
uspol
NIH is amassing private medical records from a number of federal and commercial databases for researchers chosen for RFK's #autism studies to have "comprehensive" and "broad coverage" of US citizen's health data.
The data will include medication "records from pharmacy chains, lab testing and genomics data from patients treated by the [VA] and [IHS], claims from private insurers and data from smartwatches and fitness trackers," all to be linked together.
https://www.cbsnews.com/news/rfk-jr-autism-study-medical-records/
1/ C and I are both coming to terms with the disabling reality of her #autism . She needs a lot of patience, support, time, energy and love from me. I’ve already got 5 kids, a job and the housework to juggle, and I’m not sure I’ve got much left for her too. She literally doesn’t eat, drink or take her meds unless I bring it all on a tray to bed for her. This isn’t really what I signed up for. I understand that if I invest in caring for her, she’ll do better and will need less support but…
When we say that tech can only ever be as "good" as the social/political world into which it is introduced, this is wtf we are talking about:
"Medication records from pharmacy chains, lab testing and genomics data from patients treated by the Department of Veterans Affairs and Indian Health Service, claims from private insurers and data from smartwatches and fitness trackers will all be linked together...
"What we're proposing is a transformative real- world data initiative, which aims to provide a robust and secure computational data platform for chronic disease and autism research," [NIH Director Dr. Jay Bhattacharya] said."
https://www.cbsnews.com/news/rfk-jr-autism-study-medical-records/
Well written, and as always, thank you for being a strong voice in the community.
I do want to take issue with one of your points though. You said "The image [RFK Jr.] portrayed of what it is like to be autistic is nowhere near the truth, it never has been.”
But what you said isn't true. There are autistics who can't toilet themselves independently. There are autistics who are non-verbal. There are autistics who never learned how to communicate with others ... or I should say, with whom the people around them never learned how to communicate.
It’s important to include those people in the discussion as well. They may never hold a job, either because they would never have been able to, or because the services offered to them believed that wasn't a course worth pursuing. They may never pay their taxes.
But they, and we — all of us — deserve respect. All of us have value.
It’s pretty wild that I have zero overlap with my parents experience of raising me and my brother vs me raising my kid. They understand it’s different but they just can’t really grasp HOW different. #autism
I think we've probably all seen the truly horrible things that RFK, aka Mr Worm-Brain, has been saying over the last week or so. There have certainly been enough excellent rebuttals and replies appearing on my TL to suggest it. There is nothing new, in a sense, in what he is saying. In many ways, it's the same tired arguments that AS has been coming out with for years, although perhaps a little bit more extreme and openly said. It is the fact that he, the US health secretary, is saying them and the implications that this could have, that has, perhaps, aroused us the most.
We are right to be outraged and upset. The image he portrayed of what it is like to be autistic is nowhere near the truth, it never has been. But, what has to be remembered is that for a long time it was far nearer the understood truth, than not. And that time, is not so far in the past. Many of us here are old enough to have lived through the timeline of autism, in the modern sense, of it really beginning to leave the institutions and the associations with extreme learning disabilities and becoming more widely recognised and understood. Implicit in this, in the medical model that has driven it, has always been the false divide between the functional and the non-functional. The useless eaters and the useful, as Asperger described it. It has given rise to the horrendous functioning labels and to the notions of Aspie superiority, that a small minority still cling to.
Most of us know, only too well, just how useless these notions are. That the reality of our experience is far more complex than that. Sure, there are those who, for a variety of reasons, struggle to live within the world, or at least to do so without a great deal of help. But that's true of many people. The homes and institutions that enable many, do not just cater to autistics. Equally, there are those who have no real problems. But for the vast majority of us, we just bounce around in between. Having our good days and our bad days, not struggling with something's as much as others, but never terribly consistently. The truth of autism has always been far more complex than some would like to believe.
How much of this Mr Worm-Brain understands, or even cares to, I don't know. He may just be stuck in his past, in his youth, when the image he portrayed was far more commonly the understood one. The same dire image that was dragged across our screens during the height of the vaccine's scandal, to show just how awful it was that they caused autism. The fear, that in a sense, still lives within much of society, that AS feeds on and, in many respects, encourages. The ignorance that can make autism seem frightening and almost unnatural and the apparent increase of it, a source of fear and concern.
This, in the classic way, is what RFK is really trying to tap into. The ignorance of many and the fear of the unknown. It is an all-time favourite of the despot's playbook. To what end, I don't know, and that is what has me worried. Because I seriously doubt it is for our benefit. But, in many ways, I really do hope that it comes simply from his ignorance, his willingness to see us as an easy and obvious way to crack open a door to somewhere else. Because, if so, he really isn't going to expect, or understand, the shit-storm that will come his way, when he manages to piss us all off.
I am at work and noticing no one else appears to be struggling with noise and light and conversations. They are actually seeking them out.
putting a pause on bill fundraising because I need groceries!
$26/$60
https://www.paypal.com/paypalme/ourinsatiabesouls
#MutualAidRequest
#lowincome #Disability #MutualAid #disabilitymutualaid #BlackMutualAid #crowdfunding #PWD #DisabilityCrowdFund #Queercrowdfund
#BlackMastodon #actuallyautistic #autism #HelpFolksLive2025
@mutual_aid @MutualAidVisibility
@mutualaid @anarchomutual @blackfedi
Can we please remove "contributing” as an adjective to describe people's value?
People have value, as members of society, regardless of whether they contribute to society. And regardless of whether they do any of the other things people routinely mention, including paying taxes.
For the record since I have a friend whose reaction to my saying, "the more I read the more certain I am that I'm on the spectrum," came off a bit like, "well I doubt it, but if so, that might be bad," well - no.
For me, just coming to the realisation that the way I live is a construct of my own that includes some major features that minimize or exclude situations that cause me major mental pain - that others do the same thing is, well - lightening the burden a bit #autism
Someone needs to tell this dumb motherfucker that many of us #autistic #taxpayers hold doctorates, have jobs, play sport, go on dates, use toilets, and are fully functional. #Autism is a natural neurological variation. It is not caused by #vaccines. #RFKjr is pushing Nazi lies.
https://www.europesays.com/uk/38601/ Researchers uncover genetic link between autism spectrum disorder and myotonic dystrophy type 1 #Autism #brain #Children #Gene #Genes #Genetic #Genetics #Genome #Hospital #muscle #MyotonicDystrophy #Neuroscience #Protein #Research #rna #Science #Splicing #UK #UnitedKingdom
Brain wormed and eugenic
This is a great summary about the actual US situation and the brain wormed:
"In claiming that autistic individuals "will never pay taxes, never hold a job, never play baseball, never write a poem, never go out on a date," and that "many will never use a toilet unassisted," he overgeneralizes and, I’d argue purposefully, pushes eugenic ideologies."
@youronlyone@c.imWe're two weeks (4 episodes) in and they only further established that Sabi 사비 is #Autistic coded. They should've just made it official when they're making it obvious. 
