#lupus
These are public posts tagged with #lupus. You can interact with them if you have an account anywhere in the fediverse.
Acaba la #SemanaSanta y ya solo me quedan los días de #vigilia como recordatorio de lo que fue. Que desde la fe se puede vivir en casa pero echo de menos lo que se vive en la calle. Los días de sol y playa.
Al menos doy gracias por las experiencias pasadas. Eso no me lo quita nadie. Ni el lobo.
#43 Semana Santa: Plan A y Plan B 
https://domandoallobo.blogspot.com/2015/04/43-semana-santa-plan-y-plan-b.html
#lupus #fibromialgia #EncefalomielitisMialgica #Sjögren #SAF #NeuralgiaDelTrigémino #dolor #DolorCronico #Autoinmunes #pacientes #crónicos
Domando Al Lobo, Lupus Eritematoso Sistémico, LES,…
domandoallobo.blogspot.com
@danibear13@jrpg.townMy name is Danielle and here's my #introduction. I'm a #trans woman and immigrated to #canada from the #ukraine when I was 5. I play #videogames, do #writing, #reading and religiously listen to pop music.
Another thing about me is that I have terminal #cancer and juvenile #lupus and may only have a short time left to live. I'm looking for friends if anyone wants to be, especially from the #disability and #lgbtq communities
@Gussy05@mastodon.socialSo I actually voted this government in, and so far since then, I've accepted that I'm disabled, and now they are suppressing disability benefits, i accepted that i'm non binary and now they're saying this doesn't exist among other attacks on the community. I'm really worried what I might discover about myself next...
#UK #TransRights #enby #nonbinary #disability #lupus #autism #adhd #labour #government
@danibear13@jrpg.townMy name is Danielle and here's my #introduction. I'm a #trans woman and immigrated to #canada from the #ukraine when I was 5. I play #videogames, do #writing, #reading and religiously listen to pop music.
Another thing about me is that I have terminal #cancer and juvenile #lupus and may only have a short time left to live. I'm looking for friends if anyone wants to be.
As the meds that I take for #lupus continue to help me feel better, I've come up against an interesting paradox: I have more energy, but my body still demands that I move slowly.
Learning to separate "I have more energy today" from "that means I can get a lot done" has been difficult and runs counter to the culture of productivity that my mind has been trained for. And that training runs deep!
#FriendlyReminder la #piel es imperfecta. Tiene texturas. Poros, #acné, granitos, puntos negros, rojeces, escamitas, distintos tonos, manchas,... y según pasan los años ¡hasta líneas de expresión y arrugas!
#Filtros, la luz adecuada, skin cares y #maquillajes con mil paso y productos, clínicas estéticas desde muy jóvenes,... están distorsionando una imagen ya distorsionada hace años.
El #Lupus, #Sjögren, #Rosácea,... pueden poner a prueba la autoestima. Lo sé bien. Sé amable contigo. #SinFiltros
In February I joined my annual Make-A-Thing-A-Day group that gathers on FB. I bought supplies and spent the month playing around with Zentangle tiles, neurographic art, and a new set of watercolor magic markers (which are the bomb!). All low energy and very manageable.
With the new meds and the progress I'm making, I hope to make it back to the pottery by summer, but until then, I'm having fun!
#Zentangle #NeurographicArt #lupus #doodling #chronicillness @chronicillness
I am happy to report that I do indeed have enough measles antibodies. 
At the doctor’s office getting my measles titer done. I was *probably* vaccinated between the years of 1963 and 1968, and in those years, the vaccine used may not provide immunity. Time to find out!
Now that it’s warmer, I’ve been able to get to the dojo with my husband and watch the tai chi class.
The last time I went was two weeks ago and I could only sit and watch. Tonight I totally surprised myself and was able to do the full Yang style 40 form before sitting down!
I’ve been on the new meds for three weeks now. Definitely less fatigue and more energy 
10 months into #lupus and I’ve made the earth shattering discovery that I can sit and do meal prep! 
I have no idea why I didn’t think of this before.
A quiet day for me. It's rainy out, and I'm couch potato-ing it today. Starting two new powerful treatments for #lupus in the course of one week has thrown me a bit off center. I'm in the "loading" stage, so both treatments happen fast and furiously at first, but after this week of five shots, it's just one shot a week . Both treatments are injectable, one I inject myself, the second requires a doctor's visit.
I can't get the phrase "Inject-a-Jon" out of my head 
Study: Misdiagnosis of lupus symptoms linked to mental health, trust issues
Patients whose autoimmune disorders such as lupus were initially dismissed by doctors as psychosomatic show long-lasting adverse impacts on their mental health and trust in medicine, according to a new British study.
Patients whose autoimmune disorders such as lupus were…
UPIHealth Stuff
Got my two shots in my belly yesterday. Two more next week, then it's one a week after that. The whole thing is a lot easier than it sounds - preloaded syringes come in the mail. They look a look like EpiPens, and are somewhat automatic - once I push it into the skin it automatically will deliver the meds, then with a loud click it tells me it's done. Today I feel a little hungover - kinda like I had lots of alcohol and/or sugar before bed, though I had neither!
No sé qué pasó pq estoy posteando poco y escribiendo menos, pero la semana pasada el #blog tuvo una barbaridad de visitas.
A los seguidores y a los que distéis con él por casualidad, #GRACIAS
#blogger #bloguera #Bloguers #Mastoblog #Mastobloguers #Mastoblogger #salud #health #Lupus #LES #SEL #EncefalomielitisMialgica #MyalgicencEphalomyelitis #Sjögren #Sjögrens #Fibromialgia #fibromyalgia #migraña #migrañas #migraine #migraines #Raynaud #raynauds #RaynaudsDisease #natura
https://domandoallobo.blogspot.com
Health Update
Got home from work today to discover some good news: my insurance has approved a drug that I will start injecting once a week. My lab numbers are all improving, just not fast enough, so this will be a welcome boost to the progress I've been slowly making.
@justiceforsab@mastodon.socialA question for #wheelchair users and/or #disabled folks: do you ever just dream of your feet touching the floor or even doing trivial things like going to the bathroom or transferring in and out of bed? My grief regarding things that I can’t do plays over and over again in my head. Anyone?
#disability
#actuallyautistic
#autism
#disabilityjustice
#mecfs
#lupus
#cancer
#mentalhealth