These are public posts tagged with #accommodation. You can interact with them if you have an account anywhere in the fediverse.
I could use some community advice. I have multiple sleep disorders: apnea, insomnia, and "social jetlag," where my body disregards the local time and acts as if I belong in a timezone several hours behind the local time no matter what I do. I have treatments for these, including a CPAP and medication to sleep at night and be awake in the day, but even so, I am struggling mightily with the early morning meetings with my new job, to the point that being awake for them is ruining my productivity for the rest of the day.
Added to this, I'm autistic, which makes it hard to communicate my needs effectively, and I had a *very* bad experience in a previous job when went to HR about it to request an accommodation. (They forced me to take unpaid medical leave rather than allow me to adjust my work schedule slightly, and I had to interact with a very ableist HR person regularly from then on.)
How do I bring this up with my new boss and find a happy compromise that lets me do my job?
I am an #actor #writer #director and #teacher in the field of #drama #theatre and #performing #arts currently working on my #PhD on the #epic #hero and #mythical #archetype. I am from the Netherlands, studied #acting at the #toneelacademiemaastricht with a #Master degree from #RADA and currently studying my #DoctorOfArts at the #university of #NoviSad in #Serbia. I run a little #creative #retreat for #residency and #accommodation in the #balkans called #BalkanRetreat. www.balkan-retreat.com
Got an unexpected #accommodation request for your #anatomy & #physiology lab student? The A&P Student Accommodations Handbook from #HAPS is a must-have! Don't forget to collaborate with colleagues for extra insights. Check it out: https://theAPprofessor.org/151
“Your test results are normal”
“You’re just anxious”
“You’re deconditioned”
“What do you want ME to do?”
“Have you tried worrying less?”
“It’s all in your head”
“Have you been drinking?”
POTS patients spend years hearing comments like this.
They fight for diagnosis - only to be left disappointed by the lack of support
I have a good friend who just went through this. Despite my telling her over and over that there’s no cure for POTS - she genuinely thought that she would be the exception.
That if she could “just” get the diagnosis - she would be cured.
She believed she wouldn’t end up like me.
When she was finally diagnosed - all the got was a beta blocker and instructions to check online for help with salt and fluids.
She was told they would follow up in a year - and sent on her way.
She was absolutely distraught. The reality that she wasn’t the “exception” crushed her.
Here’s the painful truth - very few people are the exception.
Our medical system is great at handling acute issues - it’s woefully ill equipped for complex chronic ones.
Often the best you will get is validation and a bandaid.
For those who’ve been healthy their entire life - this is soul destroying.
It doesn’t matter how many times we tell them that there’s no fix - they do not believe us.
They’re certain we just aren’t “trying hard enough.”
When they’re forced to confront the reality that we tried just as hard as they did - they’re scared. They feel abandoned. Hopeless. Cheated.
Cheated out of the life they wanted for themselves. Scared to end up like those “other” people they thought they were better than.
There’s no easy solution to this - it takes time to come to terms with becoming disabled. You have to mourn the life you had and learn to adapt to your new reality.
Most doctors don’t help patients with this. They diagnose and run.
No one is coming to save us so we do whatever we can to save each other.
Patients find support on social media and chronic illness message boards. They reach out to advocacy organizations. They research on their own.
It takes a lot of spoons to try and learn how to live with chronic illness - and there’s no welcome guide.
My series on POTS is an attempt to provide a resource to help patients quickly and easily access tips and tools to help them manage their new life as a disabled person.
Part Three is everything I wish I had known when I was diagnosed - including tips on salt intake, compression stockings, medications, pots-proofing your home and more:
https://www.disabledginger.com/p/learning-to-live-horizontally-your
#pots #dysautonomia #chronicillness #spoonie #longcovid #MECFS #mcas #disability #accommodation #accessibility #covidisnotover #covidisairborne
When you have POTS - being upright is a challenge.…
The Disabled GingerMy mega guide to living with POTS/Dysautonomia is here!
I cover everything I learned the hard way over years of living with this condition.
Salt, fluids, compression, medication, mobility aids and all the lifestyle adjustments you can imagine.
Patients can wait years for a diagnosis - being gaslit and dismissed along the way. When they DO get diagnosed - they’re often not given much in the way of support or coping tools.
It can be devastating when you’ve spent years suffering and then assume you’re finally going to get the help you need.
Doctors don’t understand the condition very well - and as a result we learn a LOT from other patients and painful trial and error.
My hope is this guide can serve as a soft place to land and find support, tips and ways to cope and stay safe:
https://www.disabledginger.com/p/learning-to-live-horizontally-your
#pots #dysautonomia #chronicillness #spoonie #longcovid #MECFS #mcas #disability #accommodation #accessibility #covidisnotover #covidisairborne
When you have POTS - being upright is a challenge.…
The Disabled GingerThis has always mattered, but it’s about to matter even more.
The Job Accommodation Network (JAN) offers free, expert, and confidential guidance on workplace accommodations for workers with disabilities.
Find workplace accommodation scenarios by disability, limitation, or occupation.
Located on the Mescalero Apache reservation in the Sacramento Mountains, Inn of the Mountain Gods is surrounded by gorgeous scenery, with a top 50 rated golf course, spa services, and outdoor activities, including zip-lining, boating, biking and horseback riding.
#OptOutside #roadtrip #travel #daytrip #roadtrip #nature #whataview #scenic #earthpix #igersnm #NewMexico #instatravel #travelgram #explore #Ruidoso #Mescalero #SacramentoMountains #lodging #accommodation #golf #hotel #spa
Black Range Lodge | Mining once fed Kingston’s get-rich-quick dreams. Today, its Black Range Lodge promises more soulful rewards - https://www.newmexicomagazine.org/blog/post/mining-history-black-range-lodge-kingston/
#NewMexico #history #lodging #accommodation #travel #weekendgetaway #roadtrip #offthebeatenpath
A step above the rest
In part one of our Canadian travel special, Lola Cristall finds the delectable Muir Hotel, and explores the Queen’s Marque neighbourhood of Halifax, Nova Scotia
https://lucire.com/2024/1020vo0.shtml #travel #Volante #Canada #Halifax #NovaScotia #NS #QueensMarque #MuirHotel #accommodation #luxury #FiveStar
Lots of awesomeness in this week's newsletter! We cover #access, #accessibility, reasonable #accommodation, improving accessibility to #housing and the #built #environment, #leadership opportunities, #transport feedback, reading #tools and #technologies, #event reminders, and more!
https://mailchi.mp/2b5cf997f460/be-seen-be-heard-be-connected-rmere-friday-11-october-2024
Bad news bad news bad news.
I desperately need an advocate and a place to stay.
Help me please.
This never works but god maybe someone will help me for once.
US Employers Must Accommodate Abortions, Birth Control, Agency Says
https://www.medscape.com/s/viewarticle/us-employers-must-accommodate-abortions-birth-control-agency-2024a100076m?src=rss&icd=login_success_email_match_norm #US #BirthControl #employers #accommodation #abortions #contraception
U.S. employers' obligation to accommodate workers'…
www.medscape.complz #boost Situation terrible
Abuse and not fed 2 days. Living on scraps. I don’t think can survive much longer.
I’m fleeing #abuse and #neglect Denied basic needs for years.
If anyone wants to take me in & be my #carer you’re welcome to help.
I am #disabled but you really just need to do basics around a normal day. Bring me some food. Throw on some laundry.
It would include carer allowance (not means tested, about 75$ week) carer allowance (up to about $500 a week if you aren’t working, or possibly less depending on how much you work.) We could go halves in rent or some other arrangement depending on your living circumstances. If you’ve got your own #home, even better.
I have some emergency savings to get going. Can sort something out.
In #Melbourne, #Australia.
Might even consider moving states. Nobody here been keen to help so far.
The agencies and orgs don’t help disabled people. Tried them all. It’s been years.
If you’re on #Facebook, #Instagram, #Threads, etc please post and share this.
#housing #abuse #neglect #accommodation #mutualaid #homelessness #economy #MutualAidRequest #ChronicIlness #Neisvoid #MECFS #pwlc #Pwme #MyalgicEncephalomyelitis
@disability @disabilityjustice @mecfs @mutualaid @chronicillness @longcovid@a.guppe @multipledisabilities @socialwork
@neisvoid
@housing@a.guppe
@RAHU
#boost plz Situation worsening.
Are people broke? Cutting on essentials. Can’t afford to eat?
Then why not try helping others?:
I’m fleeing #abuse and #neglect Denied basic needs for years.
If anyone wants to take me in & be my #carer you’re welcome to help.
I am #disabled but you really just need to do basics around a normal day. Bring me some food. Throw on some laundry.
It would include carer allowance (not means tested, about 75$ week) carer allowance (up to about $500 a week if you aren’t working, or possibly less depending on how much you work.) We could go halves in rent or some other arrangement depending on your living circumstances. If you’ve got your own #home, even better.
I have some emergency savings to get going. Can sort something out.
In #Melbourne, #Australia.
Might even consider moving states. Nobody here been keen to help so far.
The agencies and orgs don’t help disabled people. Tried them all. It’s been years.
#housing #abuse #neglect #accommodation #mutualaid risk #homelessness #economy
If you want to book #accommodation for a family of four (including two teenagers) and you don't want to use #AirBnB or #Vrbo, what do you use? If it matters, in the UK. #travel #reservations #hotel #BnB #HelpRequest
@disabilityjustice @disability @chronicillness @mecfs
Please ask any Australians you know if they can help me with #accommodation/#carer. Situation worsening. Please #Boost
I am in #Melbourne, #Australia
Update: Someone triggered the overhead lights... *sad trombone sound*
But that's why I am so glad i worked with the university #ADA office to get the overhead shades as an #accommodation.
I hear a couple of other people in the suite talking about the lights, that maybe they're on a timer, because apparently no one else wanted them on, either. (;
“It’s so difficult for students to work hard to get offered a place in college, only to have to defer because they can’t afford it, or just can’t make it work because they can’t find somewhere to live.”
https://www.independent.ie/irish-news/every-summer-theres-a-scramble-more-students-deferring-after-losing-out-in-hunt-for-accommodation/a843897199.html
#housing #university #accommodation #money #property #flats #living #Dublin #college #students #rent #lease #Europe