Had my first shot yesterday for the #lymedisease clinical trial. Pretty sure I'm in the placebo group because today my arm feels like nothing happened. 😅😭
Still, happy to be participating. Either it's a really well tolerated shot or I'll be immune to saline in two weeks. Watch out, ocean! 🌊😂😜
@chamberlainnl Yep, I'm 2 shots into that one (and it's my first clinical trial) and ... maybe it's just well tolerated.
I did wish that they could've taken down more of my information when I was at a computer, rather than playing "let's make you spell every medical diagnosis you've ever had while wearing a mask, and take dictation" though.
@dentalflossbay ha, yep! They even had someone on a laptop asking me medical questions when I was in the clinic. Still...hoping it works and they get this thing to market.
@chamberlainnl The tech working with me was pretty thwarted by not having a clear mapping from the items on my meds list, to diagnosis dates. The words "when did you start being transgender?" were uttered, then backpedaled from. I spelled "vaginal atrophy" aloud as requested, without snickering, and I think that goes on the bingo card for medical interactions.
@dentalflossbay ha, oh noooo...! Yeah I had some awkward convos about contraception despite the fact that I have done IVF 3x and absolutely definitely can't have (another) kid I still had to agree to use contraceptives. Also the lady doing mine was reading the list of outdoor hobbies (NGL picnicking made me laugh) and animals and said "yeah this was written by English people so it's really bad". And kept repeatedly complaining about the silly English things.
I'm English 😂
@chamberlainnl Yeah, I get that they don't want to experiment on pregnant people, but given that they're doing a urine test each time and the vaccine platform itself is safe for pregnancy, I'm not sure why they care so much about listing the reasons I could not possibly be pregnant.
@chamberlainnl The technician had the audacity to be surprised when I promptly gave year-month-day on my last menstrual period (several years in the past) despite some head-scratching over dates of diagnosis for various small things.
@chamberlainnl Also my second appointment involved looking up the state of RI website for reporting employee wage theft, after the (same) technician complained that his paycheck was a week late and he was planning to not show up on Monday if this wasn't rectified.
@dentalflossbay omg that's bonkers 😳😂
That's much worse than all of the people at our site complaining they didn't have any sharpies.
Additionally I was told I was going to get a card at the end onto which they deposit the payment, but they never gave me anything. I don't care particularly as I wasn't doing it for that reason but still. Where's my card?
@chamberlainnl I got $50 for each visit, I think, on a plastic "clincard" that's reloadable. I get text message notifications each time they load it. I'd ask at the next visit...?
NB if you have an adverse event (I had an upper respiratory infection that's packing a lingering cough) they start calling and texting to check in, so I'm having a "nope, still coughing" text interaction with a staff member every few days.
