A sincere thank you for the detailed response. I guess one "positive" to come about is all of the ME/CFS people, reoccurring EBV people, etc. are finally having a moment in the sunshine where their problems are being actively discussed. Like you, I wish it didn't have to be under these circumstances. It must be awful to know what you've gone through personally and then having to watch so many go through it now.
Also really glad to hear that there are some existing treatments for the cognitive issues. My dad forgets to check in these days, but he is on his first attempt at clearing his brain fog with supplements, so I'll have to find out how it's going so far.
And thank you, personally. I am doing OK. Horrified for the people who are doing the continuous viral reinfection cycle, determined to help spread info about it as best I can, but also happy that in our home we have chosen a different path that's working for us at this point in time. We always kicked around the idea of homeschool for our kids, being in a state that doesn't take education seriously while being two highly educated people. We always kicked around the idea of homesteading. The pandemic spurred us to do both and we only wish we had started both earlier at this point.