Brian Shuell @Bshuell@qoto.org
- @Bshuell
Husband, Father, former software developer with myalgic encephalomyelitis, Living a limited life, missing from many places. #mecfs #pwme #longcovid #neisvoid
#MyalgicEncephalomyelitis #MyalgicE
This can also apply to people with #pwme as well as #LongCovid
How to support people with long COVID : Life Kit : NPR
https://www.npr.org/2022/12/09/1141967663/how-to-support-people-with-long-covid
"In the 1980s, many people in the medical community treated chronic fatigue syndrome as a punchline. Some doctors dismissed patients’ debilitating symptoms, including crushing fatigue and crashes after exercise, as figments of their imaginations. Media outlets even dismissively nicknamed the condition “yuppie flu,” since many cases were reported among affluent white women."
https://time.com/6240058/post-viral-illnesses-common-long-covid/
"Because so many physicians are uninformed about ME, some at long COVID clinics prescribe therapies that have been proven to be harmful to patients who experience post-exertional malaise (PEM). Graded exercise therapy (GET)—a controversial form of physical therapy for ME and long COVID which slowly increases exercise over time— worsens patients’ symptoms who experience PEM. 'Graded exercise therapy implies that you can exercise yourself into fitness and resolve the illness,' Bateman says. 'When in reality, that’s not the case.'"
https://www.popsci.com/health/long-covid-care-chronic-illness/
Is the a "sprint" in medical research like there is in software development? If so, we need one for #mecfs and #LongCovid
“'Helping people is my passion, yet I can’t do that anymore': how long COVID ended the career of a young paramedic"
"KEY POINTS
Annual medical costs associated with long Covid are estimated to be around $9,000 a year, on average.
Long Covid is a chronic illness that results from a Covid-19 infection. There are hundreds of potential symptoms, which can be debilitating for many people.
Treatment largely consists of symptom management, since there’s no known cure for long Covid, medical experts said."
"'It’s a moment where the public and the medical community are realizing that this is real. This is what happens after certain infections,' said Akiko Iwasaki, a professor of immunobiology at Yale University and a co-author of a review article on covid-19-related cognitive impairment.
'I think it's their time to be recognized,' she said."
#longcovid
#mecfs
#pwme
https://www.washingtonpost.com/wellness/2022/11/28/long-covid-brain-fog/
New York Magazine Article Biased and Riddled with Errors | Occupy M.E.
https://occupyme.net/2022/11/22/new-york-magazine-article-biased-and-riddled-with-errors/
ME/CFS and Long COVID: Q&A With the CDC's Dr Jennifer Cope
Reposting a photo of my little friend. This time, I've used the caption feature for the benefit of the visually impaired. Will remember to do this in the future. #millionsmissing #mecfs #pwme #LongCovid
This is a response to @nymag
For the poorly researched piece this past week. The tone of the author on social medial has been very dismissive of the people who suffer from these incurable diseases.
#pwME #LongCovid #MECFS #MyalgicE
https://www.meaction.net/2022/11/10/elementor-59066/
This is my dog. She is also an advocate for #pwme, #mecfs , #LongCovid
Solve M.E. & Community Partners Denounce Misleading New York Magazine Article - Solve ME/CFS Initiative https://solvecfs.org/solve-m-e-community-partners-denounce-misleading-new-york-magazine-article/
- @Bshuell
Husband, Father, former software developer with myalgic encephalomyelitis, Living a limited life, missing from many places. #mecfs #pwme #longcovid #neisvoid
#MyalgicEncephalomyelitis #MyalgicE
