This is not what many people would like to hear I suspect but is an important message to take on board:
"The majority of research funding [in general] comes from charities, with only a small percentage coming from the government for other diseases"
From:
Who Funds Research? | Why The Charity Sector is Vital For Long Covid & ME/CFS
https://www.youtube.com/watch?v=W3Ji0JTHVhs
UK-focused piece
#MEcfs #CFS #PwME @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome
โInverse vaccineโ shows potential to treat multiple sclerosis and other autoimmune diseases
The inverse vaccine, described in Nature Biomedical Engineering (https://www.nature.com/articles/s41551-023-01086-2), takes advantage of how the liver naturally marks molecules from broken-down cells with โdo not attackโ flags to prevent autoimmune reactions to cells that die by natural processes.
๐ฃ๐ฟ๐ถ๐๐ฎ๐ฐ๐๐๐ฎ๐ฎ๐ธ๐ต๐ผ๐ป๐ฑ ๐ธ๐ฟ๐ถ๐๐ถ๐๐ฐ๐ต ๐ผ๐ฝ ๐น๐ฎ๐๐ฒ ๐๐ฒ๐ฟ๐๐๐ฟ๐ฒ๐ธ๐ธ๐ถ๐ป๐ด ๐๐ฎ๐ฐ๐ฐ๐ถ๐ป๐ฎ๐๐ถ๐ฒ๐ฑ๐ฎ๐๐ฎ ๐ผ๐๐ฒ๐ฟ๐๐๐ฒ๐ฟ๐ณ๐๐ฒ
Een groep onafhankelijke wetenschappers die een vervolgonderzoek uitvoert naar oversterfte, had al veel eerder geanonimiseerde vaccinatiedata kunnen krijgen. Dat zegt de Autoriteit Persoonsgegevens (AP). De onderzoekers vroegen ongeveer een halfjaar geleden al om de data.
https://nos.nl/l/2463662 #nieuws #nos #privacy #vaccinatie #oversterfte
Mijn kortste tweet die ooit viraal ging, 4 woorden, toen iedereen om de hete brij heen blijf draaien. "Het.Zijn.De.Kleintjes." We wisten het allemaal.
Dit is niet Twitter en het zal niet viraal gaan, maar hier zijn mijn 3 woorden:
๐๐ฒ๐.๐ถ๐.๐๐ผ๐ป๐ด๐๐ผ๐๐ถ๐ฑ.
Ergste drogreden die je maar kunt verzinnen. Omdat het merendeel van de kinderen โal Corona heeft gehadโ krijgt de rest ook #virusPlicht?? En dan nog, zelfs wie het โal gehad heeftโ ontzeg je de kans om de risicoโs mbt het elke keer opnieuw oplopen te verkleinen. Faal #ministerieVanVolksVerzieking
"Why bother? #Omicron is everywhere.
It's a very dangerous question."
Do what you can to avoid infection. Here is why:
@venite zelfs als je er die hele dertien jaar praktisch permanent bij bent geweest is dit een onduidelijk verschijnsel ๐ Hoe en wanneer iemand zo groot is geworden, beats me.
Good article on 'brain fog' after #COVID19 & other problems but I call it cognitive dysfunction. It ended my career as a reporter and can be absolutely devastating.
https://www.washingtonpost.com/wellness/2022/11/28/long-covid-brain-fog/
I spoke to Dr. Johnathan Flowers (@shengokai), who studies the philosophy of technology, about Musk's takeover of Twitter and some of the different norms & affordances of alternatives like Mastodon, and how they create obstacles for people of color, et al:
RT @milenaholdert@twitter.com
Uit WOBS die nu, pas na anderhalf jaar, vrij komen: een interne RIVM-mail uit maart 2020. โDe beste strategie is inderdaad zo hoog mogelijk als capaciteit toelaat, niet zo laag mogelijkโ. 'Voordeel' van deze โUK-strategieโ is โherd immunity'
https://nos.nl/nieuwsuur/collectie/13881/artikel/2409737-wob-blog-volg-hier-de-resultaten-van-corona-informatieverzoeken
Met @Jopinie@twitter.com
๐ฆ๐: https://twitter.com/milenaholdert/status/1471480784112467969
BookWyrm is a Fediverse alternative to Amazon's GoodReads.
It lets you keep track of what you're reading, see what your friends are reading, discover new books and write reviews.
Also, people on Mastodon can follow your BookWyrm account to see your latest reading posts.
Follow the project at @bookwyrm and find out more about it at:
โก๏ธ https://joinbookwyrm.com
Join a BookWyrm server at:
โก๏ธ https://joinbookwyrm.com/instances
(Please don't join the bookwyrm.social server though, it is overloaded! ๐ )
According to news on LinkedIn the ITU voted to abolish leap seconds by 2035. I'm not about to wade into this discussion, except to make one note. Abolishing leap seconds might lead to practically noticeable effects a hundred years from now. But I guess by that time, we'll have bigger problems to deal with.
Some people like to make fun of Elon by calling him Elmo. I think that's unfair - to Elmo.
Ask yourself, what would Elmo do in that situation? He would ask questions. Lots of questions. He would talk to everyone he could before even thinking of saying anything. He would spend his whole day learning about stuff and making friends.
๐ฌNew study by Westermeier shows Endothelial Dysfunction in vitro in #MECFS
โฌ๏ธdecreased production of nitric oxide by the endothelium cells when exposed to plasma from #pwME
๐ฌsamples from the UK ME/CFS Biobank
๐๐
https://www.sciencedirect.com/science/article/pii/S1537189122000027#bb0030
@theonlysimonandorgarfunkel this makes me think of #KurtVonnegut and what an archaeologist told him as a youth:
He said something then that I will never forget and which absolutely blew my mind because no one had ever said anything like it to me before: โI donโt think being good at things is the point of doing them. I think youโve got all these wonderful experiences with different skills, and that all teaches you things and makes you an interesting person, no matter how well you do them.
Low-key due to ELCI; science, crafty stuff, cats, plants.