A thread for the seven #MECFS, #LongCovid and related research papers from w/c 7th August 2023.
Links are to our forum discussion threads, where abstracts, links to paper, analysis and discussion can be found. Inclusion does not equal recommendation.
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An exploration of victim blaming in ‘medically unexplained symptoms’: Neoliberalism and the need to justify the self, group and the system - Jo Hunt.
2/8
Development and measurement properties of the PEM/PESE activity questionnaire (PAQ) -Davenport et al.
3/8
@s4me Having a good questionnaire is important, particularly one that captures PEM. It would be great if the same questionnaire was then used throughout ME/CFS research to assess and possibly compare different treatments.
However, questionnaires will always be at risk of bias from subjective reporting of symptoms, so they will still need to be paired with activity tracking by step counters/pulse monitors etc.
