We're kicking off #PrivacyCamp24 now, watch HERE: https://privacycamp.eu/
Are you ready to ⚡️ reveal, rethink and change the systems ⚡️ ?
✅ digital systems of exclusion
✅ #HealthData & patients' rights
✅ #Privacy is big business
✅ extractivist #tech solutions for the #ClimateCrisis
Share your thoughts with us in this thread!
Looking forward to a deep-dive discussion at #PrivacyCamp24 comparing #healthdata regimes in the #EU and #UK and how (and if at all) they protect #patients' rights.
Of course #KULeuven clinical #pharmacology researcher Teodora Lalova-Spinks makes clear from the start that primary and secondary use of medical records under the proposed #EHDS is not the same regarding #privacy.
Interesting how in #England, only very few patients actually use their opt-out right for secondary medical data use.
Reasons according to Nicola Hamilton on the #PrivacyCamp24 panel: People don't know about their right. And defaults matter.
A consent requirement for secondary use in the #EHDS would have been so much fairer. 🤷
