https://edri.org/our-work/health-digital-rights-organisations-and-trade-unions-to-the-council-of-the-eu-uphold-patients-fundamental-rights-in-the-ehds/

"13 organisations and trade unions representing patients, medical professionals, persons with disabilities, consumer and digital rights, are urging the Council of the EU to uphold European patients’ fundamental rights and agree on the right for opting out of the primary and, in particular, secondary use of medical records in the European Health Data Space (EHDS) for all people in the EU."

Frankly, an opt-out doesn't go far enough, it should be an opt-in, although I understand they're trying to stop it getting even worse. #privacy #ehds