Ale Frost (Tess), Ph.D. @ales_frost@qoto.org
Independent Patient Advocate/Assistant. Sick 15 yrs before Dx, but currently at 80-90%. #MESPINE #EagleSyndrome #CSFleak #MECFS #hEDS #HSD #teamclots
on Twitter: https://twitter.com/ales_frost
Joined Nov 2022
@ErinSandersNP signed up. :)
@ceoln great idea! I just found some people to follow and told people to search for me with some hashtags I just posted
Twitter friends. Maybe you will find me if I put a bunch of hashtags. 😆
#mecfs #longcovid #neisvoid #eds #mcas #ehlersdanlos #MEspine
I can't even figure out how to search for people to follow. 😆
Independent Patient Advocate/Assistant. Sick 15 yrs before Dx, but currently at 80-90%. #MESPINE #EagleSyndrome #CSFleak #MECFS #hEDS #HSD #teamclots
on Twitter: https://twitter.com/ales_frost
Joined Nov 2022
