Ale Frost (Tess), Ph.D. @ales_frost@qoto.org
Independent Patient Advocate/Assistant. Sick 15 yrs before Dx, but currently at 80-90%. #MESPINE #EagleSyndrome #CSFleak #MECFS #hEDS #HSD #teamclots
on Twitter: https://twitter.com/ales_frost
Joined Nov 2022
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