Liessa @liessa@qoto.org

This is not what many people would like to hear I suspect but is an important message to take on board:

"The majority of research funding [in general] comes from charities, with only a small percentage coming from the government for other diseases"

From:
Who Funds Research? | Why The Charity Sector is Vital For Long Covid & ME/CFS
https://www.youtube.com/watch?v=W3Ji0JTHVhs

UK-focused piece

#MEcfs #CFS #PwME @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Lighting your own fireworks is illegal in Amsterdam.

lol.

It's only 8PM and it already sounds like a warzone outside.

Just about sums it up.

“Inverse vaccine” shows potential to treat multiple sclerosis and other autoimmune diseases

The inverse vaccine, described in Nature Biomedical Engineering (https://www.nature.com/articles/s41551-023-01086-2), takes advantage of how the liver naturally marks molecules from broken-down cells with “do not attack” flags to prevent autoimmune reactions to cells that die by natural processes.

https://pme.uchicago.edu/news/inverse-vaccine-shows-potential-treat-multiple-sclerosis-and-other-autoimmune-diseases

Elon Musk’s master plan is to turn Elon or Musk into a verb that means “Wasted $40B”. For example, “I think Toyota just Eloned… or Musked.” Either work.

𝗣𝗿𝗶𝘃𝗮𝗰𝘆𝘄𝗮𝗮𝗸𝗵𝗼𝗻𝗱 𝗸𝗿𝗶𝘁𝗶𝘀𝗰𝗵 𝗼𝗽 𝗹𝗮𝘁𝗲 𝘃𝗲𝗿𝘀𝘁𝗿𝗲𝗸𝗸𝗶𝗻𝗴 𝘃𝗮𝗰𝗰𝗶𝗻𝗮𝘁𝗶𝗲𝗱𝗮𝘁𝗮 𝗼𝘃𝗲𝗿𝘀𝘁𝗲𝗿𝗳𝘁𝗲

Een groep onafhankelijke wetenschappers die een vervolgonderzoek uitvoert naar oversterfte, had al veel eerder geanonimiseerde vaccinatiedata kunnen krijgen. Dat zegt de Autoriteit Persoonsgegevens (AP). De onderzoekers vroegen ongeveer een halfjaar geleden al om de data.

https://nos.nl/l/2463662 #nieuws #nos #privacy #vaccinatie #oversterfte

Mijn kortste tweet die ooit viraal ging, 4 woorden, toen iedereen om de hete brij heen blijf draaien. "Het.Zijn.De.Kleintjes." We wisten het allemaal.

Dit is niet Twitter en het zal niet viraal gaan, maar hier zijn mijn 3 woorden:

𝗛𝗲𝘁.𝗶𝘀.𝗟𝗼𝗻𝗴𝗖𝗼𝘃𝗶𝗱.

https://www.ad.nl/binnenland/ziekteverzuim-hoogste-in-20-jaar-grote-zorgen-om-uitval-door-stress-en-burn-outs~ae28446f/

Ergste drogreden die je maar kunt verzinnen. Omdat het merendeel van de kinderen ‘al Corona heeft gehad’ krijgt de rest ook #virusPlicht?? En dan nog, zelfs wie het ‘al gehad heeft’ ontzeg je de kans om de risico’s mbt het elke keer opnieuw oplopen te verkleinen. Faal #ministerieVanVolksVerzieking

The cat just went over to the HomePod mini on my desk, meowed at it, and Siri said "sure here is some music for you" and the cat perched on the window sill listening to Garbage and Elliott Smith.

I just want to know how long this has been going on.

Good article on 'brain fog' after #COVID19 & other problems but I call it cognitive dysfunction. It ended my career as a reporter and can be absolutely devastating.
https://www.washingtonpost.com/wellness/2022/11/28/long-covid-brain-fog/

I spoke to Dr. Johnathan Flowers (@shengokai), who studies the philosophy of technology, about Musk's takeover of Twitter and some of the different norms & affordances of alternatives like Mastodon, and how they create obstacles for people of color, et al:

https://techpolicy.press/the-whiteness-of-mastodon/

For all medical doctors who want to help patients with complex chronic diseases, please see my thread here ⬇️
https://twitter.com/katha1970/status/1594367437943644161

(If I figure out how to write it on here, I will properly post it on here later.)

BookWyrm is a Fediverse alternative to Amazon's GoodReads.

It lets you keep track of what you're reading, see what your friends are reading, discover new books and write reviews.

Also, people on Mastodon can follow your BookWyrm account to see your latest reading posts.

Follow the project at @bookwyrm and find out more about it at:

➡️ https://joinbookwyrm.com

Join a BookWyrm server at:

➡️ https://joinbookwyrm.com/instances

(Please don't join the bookwyrm.social server though, it is overloaded! 🙏 )

According to news on LinkedIn the ITU voted to abolish leap seconds by 2035. I'm not about to wade into this discussion, except to make one note. Abolishing leap seconds might lead to practically noticeable effects a hundred years from now. But I guess by that time, we'll have bigger problems to deal with.

🔬New study by Westermeier shows Endothelial Dysfunction in vitro in #MECFS

⬇️decreased production of nitric oxide by the endothelium cells when exposed to plasma from #pwME

🔬samples from the UK ME/CFS Biobank

#TeamClots

📖👇

https://www.sciencedirect.com/science/article/pii/S1537189122000027#bb0030

@theonlysimonandorgarfunkel this makes me think of #KurtVonnegut and what an archaeologist told him as a youth:

He said something then that I will never forget and which absolutely blew my mind because no one had ever said anything like it to me before: ‘I don’t think being good at things is the point of doing them. I think you’ve got all these wonderful experiences with different skills, and that all teaches you things and makes you an interesting person, no matter how well you do them.

Looks like someone is watching you.